Facioscapulohumeral Dystrophy

Question: what is the well known treatment for "facioscapulohumeral muscular dystrophy"at the world level? "facioscapulohumeral muscular dystrophy" is one type of MUSCULAR DYSTROPHY.

Answer: * No Food and Drug Administration approved therapies exist specifically for FSHD. * Occupational therapy can sometimes be used to help cope with new devices to make things easier.

Question: Herbalists, Is there a natural remedy for Facioscapulohumeral Dystrophy?

Answer: According to dystrophy.com, there is no cure for this genetic disease, but some drugs may help (see link for detailed information)

Question: Is it possible to cure the disease of "FACIOSCAPULOHUMERAL MUSCULAR DYSTROPHY" One type of muscular dystrophy? Treatment For FSHD

Answer: There are no known cures for the various muscular dystrophies. Treatments are given to control symptoms and improve the person's quality of life. Activity is encouraged. Inactivity such as bedrest can make the muscle disease worse. Physical therapy may help maintain muscle strength.(MedlinePlus) Facioscapulohumeral dystrophy is an autosomal dominant disorder characterized by weakness of the facial muscles and shoulder girdle, usually beginning at age 7 to 20. An infantile variety, characterized by facial, shoulder, and hip girdle weakness, is rapidly progressive. A classic variety has onset during adolescence or young adulthood and is characterized by slow progression and difficulty in whistling, closing the eyes, and raising the arms (due to weakness of the scapular stabilizer muscles). Life expectancy is normal. Diagnosis is indicated by characteristic clinical findings, age at onset, and family history and confirmed by DNA testing. Treatment consists of physical therapy.(Merck)

Question: Can anyone help me find statistics on Muscular Dystrophy? I need to find(an estimate) of: # of people affected, and killed by Muscular Dystrophy. I'd say, Just in the United States at least. I've got 4 main types and a small estimate of those afected, but i'm not sure if these numbers are correct: Duchennes-1 in 30,000 males, Beckers, 1 in 3,500 males, Limb Girdle in the low thousands, and facioscapulohumeral for 1 in every 20,000.

Answer: Hi there! May be able to help you out a little.. my boyfriend of 7 years has limb-girdle muscular dystrophy, so I have done a little research on it myself.. While Lou Gehrig's disease (ALS) and Marie-Charcot-Tooth present with SIMILAR symptoms to Muscular Dystrophy, due to their cause they are not categorised as muscular dystrophies. They affect motor neurons and nerves which control muscles respectively, whereas dystrophies are actually caused by the muscle cells themselves breaking down. According to the UK's main muscular dystrophy site, there are about 60,000 people in the UK with muscular dystrophy and related conditions. The official "Muscular Dystrophy Types" include:- Duchenne's Muscular Dystrophy (DMD) Becker's Muscular Dystrophy (BMD) Limb-Girdle Muscular Dustrophy (LGMD) Emery-Dreifuss Muscular Dystrophy (EDMD) Congenital Muscular Dystrophy (CMD) Oculopharyngeal Muscular Dystrophy (OPMD) Facioscapulohumeral Muscular Dystrophy (FSHMD) Distal Muscular Dystrophy Fukuyama Muscular Dystrophy (found almost exclusively in Japan) Related conditions include myopathies, myotonias, and hypotonias, as well as spinal muscular atrophies. I've found some information about the occurrence of MD in the population, but I can't put them in any sort of logical order.. sorry! I'll put them in point form. Also look at http://www.wrongdiagnosis.com/m/musdys/s… and http://www.wrongdiagnosis.com/m/musdys/p… - these websites have extrapolated data which you should be careful of, but it could be helpful! * Duchenne's Muscular Dystrophy (the most "deadly" form of MD) occurs in about 1 in 3200 live male births. The risk of a non-hereditary form of DMD is about 1 in 12000. About 1/3 of all Duchenne's cases are not genetic. About 70-80 % of female carriers can be identified, and the chance of identifying a female carrier is better the younger the girl is when being tested. * In Australia - the incidence of "Muscular Dystrophy" is estimated to be 100 per 100,000 head of population. Based on current figures (1995), it is estimated that there would be in excess of 20,000 people in Australia who have some form of neuromuscular disease. The incidence of Duchenne muscular dystrophy (DMD) is estimated to be 1 in 4,000 live male births is by far the most common form of neuromuscular disease. *There is no part of the world where MD is more common than another. * DMD and BMD are single gene disorders caused by a malfunctioning gene on the X chromosome. They are both recessive diseases , and therefore occur much more commonly in males than females. This is because two defective chromosomes must be present for the disease to occur in females, whereas only one is required in males. The occurrence of DMD is about one in 3500 males, while BMD is much less common, with an occurrence of one in 20 000 males. (http://genome.wellcome.ac.uk/doc_wtd0208… * 500 - 600 male newborns are diagnosed with muscular dystrophy each year in the US, Duchenne and Becker types. * The muscular dystophies are the most common form of hereditary disease. The most common form of muscular dystrophy is Duchenne muscular dystrophy, followed by facioscapulohumeral and myotonic. The approximate incidence is as follows: DMD: 1 in 3300 live male births BMD: 1 in 18000 live male births Congenital myotonic dystrophy: 1 per 10 000 births FSHMD: Prevalence of 1 in 20,000 http://www.virtualmedicalcentre.com/dise… * A 2008 analysis of rare diseases listed FSHD as the most prevalent form of MD at 7/100,000.- http://en.wikipedia.org/wiki/Facioscapul… Hope that helps out a little.. good luck! I know a few of the stats contradict each other, but make what you can of them!