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Spinal Muscular Atrophy
Get the facts on Spinal Muscular Atrophy treatment, diagnosis, staging, causes, types, symptoms. Information and current news about clinical trials and trial-related data, Spinal Muscular Atrophy prevention, screening, research, statistics and other Spinal Muscular Atrophy related topics. We answer all your qestions about Spinal Muscular Atrophy.
Question: Is it possible for a newborn to be diagnosed with Spinal Muscular Atrophy? Is it possible for a newborn to be diagnosed with Spinal Muscular Atrophy if there was never any family history of SMA? The parents do not even carry recessive genes of SMA.
I've researched SMA and I've read that it can only be inherited.
Answer: Usually nobody in the family even knows that they carry the gene. The way the check is through a blood test and what they are checking for is if the child is missing the Survival Motor Neuron. My precious baby boy had Spinal Muscular Atrophy and I can tell you we had no family histroy of it either. If somebody you know has it or you think might have it I promise I'll keep them in our prayers. God Bless
Question: I'm physically disabled(Spinal muscular atrophy) but I'm feeling down. Confidence tips? I'm female, 15. I have a life long condition called Spinal muscular atrophy and suffer from slight scoliosis (spine curveture).
I'm a rock/punk/emo I have fashionable hair and clothes but when I look in the mirror I feel like crying and just down.
I've never had a boyfriend or anything remotely close.
I think I need confidence tips or summat before I try boys?
Thanks in advance x
Answer: I hope it doesn't sound like I'm offering cliques but here goes.... It is all about attitude, we live in a world that sets standards of physical beauty that is quite unrealistic for most of us. Keep the input positive by hanging around good friends, don't "try" boys, when you build your confidence they will be attracted to you.
Looks are important to us so when you look in the mirror and you are feeling low, just pick one thing you are really happy with and focus on that, do you have beautiful eyes, is your skin clear etc....?
Be involved and proud! Challenge yourself by believing you are beautiful and anyone who doesn't think so has the problem...not you. It is true that when you have an inner strength a lot of other things do not seem so important...believe. Build that confidence from the inside out.
Question: What is the average life span for people with Spinal Muscular Atrophy Type 2?
Answer: in the 20's
Question: Does spinal muscular atrophy affect the Central Nervous System? please answer this!
Answer: Yes, but the effect is indirect. Those atrophied muscles won't be able to hold the spine properly which, if severe, may result to its collapse resulting to spinal cord compression and injury.
Question: does anyone know any intresting facts about spinal muscular atrophy?
Answer: Spinal Muscular Atrophy (SMA) is a term applied to a number of different disorders, all having in common a genetic cause and the manifestation of weakness due to loss of the motor neurons of the spinal cord and brainstem.
hope my info helps
Question: how does pregnancy affect someone with spinal muscular atrophy?
Answer: More stress on the lower back . It will be a "long " pregnancy . Your doctor will probably give you several epidural injections . Don't worry , the baby won't be harmed ..
Question: Has any one tried alternative treatment methods for spinal muscular atrophy? spinal muscular atrophy is a lethal children's disease
Answer: I believe that is much too risky to attempt untried manipulations on.
Question: Spinal Muscular Atrophy & HIV? Could someone please help? I am driving myself crazy. I have spinal muscular atrophy and unfortunately I cheated on my girlfriend back in August. I had protected vaginal sex and unprotected oral sex. About a month afterwards I was feeling strange so I went to my doctor and all of the test came back negate. But that doesn't mean you don't have it. Recently my girlfriend had a cold and fever with cough. The cold is basically gone except for that slight cough that is still in her system. Then yesterday she had a case of diarrhea. She thinks it was what she ate, but I can't help but be worried. As for me I was in the hospital back in November for what they think was pneumonia. But with me that's not nothing new. Recently I have been feeling weird and I don't know if it's my imagination or if there is something there. I have been looking for symptoms and don't know if it really is there or it's just me. I don't care if I die from this, but not my girlfriend please.
Answer: Get yourself tested for HIV/AIDS again. Initial infection with HIV can produce no symptoms. Most people, however, do experience flu-like symptoms with fever, rash, sore throat, and swollen lymph nodes, usually two weeks after contracting the virus. Some people with HIV infection remain without symptoms for years between the time of exposure and development of AIDS.
You should also contact the slapper you had sex with and see if she's been tested.
You're just freaking yourself out b/c of guilt over cheating on your girlfriend.
What does SMA have to do with this anyway?
Question: I have spinal muscular atrophy, and I'm wondering if I can get an online job without my GED? Hello I'm 17, and I'll be 18 Nov. 12th 2008. I have a rare disorder called spinal muscular atrophy, and I'm wheel-chair bound. It doesn't effect my brain. I've actually took and finished a class in high school on HTML and aced it. I stay online 6-8 hours a day. I'm wondering since my disorder has caused me to not get my GED at the age of 18 from sicknesses ETC, if I can become a Web Designer or get a job online to better use my 6-8 hours a day. Thanks <David Hendrix>
Answer: some companies let you do tech support from home.
(with a VPN connection, and VOIP phone)
teach yourself to program PHP & Javascript, and you just might be able to make a living off webdesign/development.
i have a laptop from the boss and only show up at the office once per 2 weeks and i'm able-bodied without an excuse. (i program)
No doubt the rigth boss will arrange teh same for you, if you are good enough. (make sure you are)
as for learning to make websites (using php, and maybe even mysql) this website ( http://www.w3schools.com/ ) is now your new God.
Question: A friend's child has been diagnosed with SMA (spinal muscular atrophy). Is this a mitochondrial disease?
Answer: Spinal Muscular Atrophy (SMA) is a neuromuscular disease characterized by degeneration of motor neurons, resulting in progressive muscular atrophy (wasting away) and weakness.
Spinal Muscular Atrophy News
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Families of Spinal Muscular Atrophy Receives 250 Baby Einstein Discovery Kits ...
Families of Spinal Muscular Atrophy
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U.TV
Michaela Hollywood, who is 21 and from Downpatrick in Co Down, has the genetic muscle condition spinal muscular atrophy. She will tell MLAs that patients need to be able to access all their services in one hospital, as she says they can in other parts ...
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SCNow
Representatives from the Make-A-Wish Foundation asked officials at the school if they would like to help grant the wish of Dixon, who suffers from Spinal Muscular Atrophy. The condition causes progressive muscle degeneration and weakness.
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MarketWatch (press release)
ELK GROVE VILLAGE, Ill., Jan 19, 2012 (GlobeNewswire via COMTEX) -- Developing new therapies to treat and ultimately cure SMA is the driving force behind Families of SMA. To achieve this goal, Families of SMA aggressively invests in drug development ...
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Patch.com
She took on a service project to create awareness and help children with a condition called Spinal Muscular Atrophy, or SMA. She made felt blankets for children with this condition and spoke about the condition at various places.
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Salisbury Journal
The book, which tells the story of her life including her early career as a physiotherapist and her diagnosis of proximal and distal spinal muscular atrophy in the 1970s, is available from Waterstones online or from campaigns@muscular-dystrophy.org.
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IBNLive.com
KOCHI: It felt like God had willed the worst for Siju when he was detected with an incurable genetic disease called spinal muscular atrophy. His parents were forewarned that with time his muscles would weaken and subsequently his mobility too would be ...
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Sacramento Bee
1, support research into more than 15 diseases in MDA's program, including Duchenne muscular dystrophy (DMD), ALS (amyotrophic lateral sclerosis or Lou Gehrig's disease), spinal muscular atrophy (SMA), facioscapulohumeral muscular dystrophy (FSHD), ...
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Carroll County Times
Second-grader Casey Reno has cystic fibrosis, a type of lung disease, and second-grader Julian Lewis suffers from spinal muscular atrophy. The read-a-thon featured sing- and dance-along stories as well as self-reading time. Students read the books of ...
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Emailwire (press release)
COM, January 11, 2012 ) Santa Barbara, CA -- The Gwendolyn Strong Foundation (theGSF), a Santa Barbara-based nonprofit organization dedicated to increasing global awareness of Spinal Muscular Atrophy (SMA), the #1 genetic killer of young children, ...
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