Desmoid Tumor

Question: what is Desmoid Tumor?

Answer: Desmoid tumors often appear as infiltrative, usually well-differentiated, firm overgrowths of fibrous tissue, and they are locally aggressive. They sometimes occur after childbirth or surgery. http://www.emedicine.com/derm/topic778.h… http://www.cancer.gov/Templates/db_alpha… http://www.emedicine.com/derm/byname/des… http://www.medterms.com/script/main/art.…

Question: what are the most common causes for desmoid tumors? heard that women are more subjected to it special after surgery or due to hormone changes, but as for men what is usually cause it specially when no surgery done?

Answer: # Tender subcutaneous mass in lower abdominal wall # Firm subcutaneous mass in lower abdominal wall # Arm lump # Leg lump http://www.wrongdiagnosis.com/d/desmoid_… Hope this helps u........

Question: New Jersey doctors who treat Desmoid Tumors? I need to find a doctor who is familiar with desmoid tumors in NJ

Answer: I thought the best facility for this type of cases which is closest to NJ is the Sloan Kettering Memorial Hospital in Manhattan?

Question: I need a Dr. that knows about desmoid tumors?

Answer: Desmoid tumors occur in children and young adults. They arise from muscle or connective tissue (“soft tissue�) around muscles or bones, and can appear anywhere in the body. Incidence Desmoid tumors are very rare, accounting for less than 1 percent of childhood tumors. They can occur at any time throughout childhood. Influencing Factors The cause of desmoid tumors is unknown. In some patients, desmoid tumors can occur as part of an inherited syndrome called Gardner Syndrome, in which patients also have colon polyps or colon cancer. Desmoid tumors can also occur in pregnant women, which has led to the theory that hormones may influence growth. Most of the time, desmoid tumors occur in previously healthy patients with no other medical problems. Clinical Features and Symptoms Desmoid tumors usually appear as visible or palpable masses in the soft tissue beneath the skin. They can be painful. They can grow to be quite large (4 – 5 inches) in diameter before they are discovered. They can spread to involve nearby normal tissues around them. Depending on where the tumor is located, other symptoms may occur. Desmoid tumors usually occur as a single tumor, but sometimes a patient may have more than one tumor at diagnosis. Survival Rates Desmoid tumors are neither a truly benign nor a truly malignant cancer. They can be life-threatening if located next to vital organs like the spine or trachea (windpipe) . Surgical removal of the entire tumor usually achieves a cure. However, if even small amounts of tumor cells remain, the tumor can grow back again. Depending on the location of the tumor, surgical removal may not be possible. In these cases, radiation therapy or chemotherapy may prevent further tumor growth or cause the tumor to disappear. Current Research St. Jude, is evaluating whether chemotherapy can successfully control desmoid tumors in children or young adults for whom surgery or radiation therapy is not feasible or has failed in the past. A new technique called RFA (radiofrequency ablation) may be used in selected cases in which surgery, radiation or chemotherapy has been unsuccessful. I've enclosed two links that will give you a great deal of information.

Question: Waiting to have surgery to remove tumor, why isn't my boyfriend there for me? I recently went to my doctor who found a lump in my arm and the next thing I knew I was getting MRI, CT scan and XRays and then was told to go to an oncologist. I just saw the oncologist and he said he wants to do surgery to take the tumor out, but is not going to do a needle biopsy first because the tumor is near a nerve and it will hurt. The doctor also said that you can't be sure until he looks at the actual tissue under a microscope, but it could be a desmoid tumor (benign) or a malignant tumor So now I am waiting, trying to go about my day to day life like everything is normal. I'm 22, living with a friend, working at my first job after college and I am so scared! The worst part is my boyfriend is telling me I am acting ridiculous. I am over reacting. I called him last night and started crying and he said "oh god my life sucks, why are you doing this to me" Not only is he not there for me but he is making me feel awful about myself. I don't what to do. I went to the oncologist on Tuesday and my surgery is this wednesday, so it's been about 3 days and i still have 5 days to go and then a day to wait to find everything out, I really don't know if I am strong enough to make it.

Answer: I'm sorry to hear about your tumor. It sounds like you're really disappointed in your boyfriend's lack of emotional support. Perhaps your relationship has been mostly you-giving and him-taking in the past. This might not be a good time to break up with him since you're so distraught. He might be an emotionally weak person and you'll have to decide later if you want to continue your relationship or not. For now, accept that he's not going to be there for you and make your own arrangements. Is there someone else you can share your anxieties with, a friend who is a good listener and can help you hear yourself so that you can learn to comfort yourself? In the end, we all really need to be in touch with our own feelings. Other people can help us a little bit, but we often need to be strong for ourselves. Once this is all over and you are done with the medical procedures, you can re-focus your sight on your relationship and quietly observe if your bf is the man you want to spend more time with, or if it's time to move on. Remember, each of us has something to deal with and he is probably feeling abandoned right now because you can't be his fun gf. Rather childish, but rather typical male. I wish you a successful operation and that the tumor will be benign. May you grow into a better, calmer and stronger person from this experience.

Question: does gleevic or lyrica effect men sexual ability? my partenrer has a desmoid tumor, and is taking these as medication, he's trying to avoid me, i wanna help him, don't wanna let this cut his share of happiness, just need to know what i am facing here, tks

Answer: They shouldnt affect sexual ability itself, but there is a possibility of it making him lethargic or apethetic.

Question: Good quick write?? My sight is blurred by tears as we gather round the grave I wish you'll be here forever your hands fit mine just perfrectly your hugs make me want to cry. Your life was full of adventure You who traveled the world when you were sick, but gave no care skating on a frozen lake only you and dad as you pretended no ones watching when you smiled ear to ear. You, who dad lifted and shoved in the car so you could be checked at the hospital, I HATE! when he said another tumor the tears I shed once again and your gone for another month! You, my mother Kimberly who will be placed in a casscet along with the pride you contain inside so in the summer when im sad I will lay on your grave Till night sheds its dawn. Writin about my mother teminaly ill with Lieomyosarcoma. I myself with Agressive Desmoid tumors. Fighting in our family is very hard.. Doctor dont know crap about us.. SUPPORT IF YOU CAN!! PLEASE OUR LIVES DEPEND ON YOUR CHOICES! 2nd comment.. You should take more control of your life! you arnt dying faster than the rest of us! You dont have to have your blood drawn every frickin month! You dont have to get MRI's for 3 hours! So think before you respond you should feel really bad right now.

Answer: that is a good write. i hope you keep writing. it is a good outlet. i will keep you in my prayers.

Question: I have an ileostomy and am not sure what to do...? I have had an ileostomy for the past 7 months ( and mines has been extremely difficult to manage).. I was diagnosed with a desmoid tumor on my small intestine.. Now since the tumor shrunk a little I went to see if I can get it reversed but the test results showed some narrowing which i guess is not too good from what the doctor said) .. Does anyone know what this narrowing is or where I can get more info on it other then my doctor - My doctor says that I get my ileostomy reversed due to the narrowness I could get sick. Should I risk taking a chance on getting it reversed or stick with it and get it fixed because it prolaspe alot as well as shrink really low when i am sleeping causing me to have alot of skin irriatations)... I am only 23 years old and am so confused and scared!!!!

Answer: I have researched on Google about ileostomies. A patient who has had Crohn's disease had an ileostomy and had it reversed. You can contact her at her at shawneejon@yahoo.com. She has had personal experience. Also, WebMD is a good site for any general health questions. Doing some investigation on your own is a way to understand medicine and medical treatments. Medicine is part science and personal. Knowing how your body works makes you a better patient. A website for digestive health: clevelandclinic.org/digestivedisease/. This may have links where you can contact a health information specialist. If you have health insurance usually your carrier will have a information line with a registered nurse. I wish you the best. I have had gastrointestinal problems in the past. Best wishes. Also, you may want to get a second opinion to be safe.

Question: How much roughly, would my large intestine and front abdominals have weighed? 13 years ago, my large intestine was sugically removed, due to a condition called Familial adenomatous polyposis (FAP). I've also had my front abdominal muscles removed, due to desmoid tumors caused by Gardener's Syndrome (related to FAP). I'm wondering how much I would weigh, if I still had them now. My build is still roughly the same, back then I weighed about 140 pounds, now I weigh 129 pounds. I'm wondering how much of this loss is due to the removal of these body parts.

Answer: roughly 10-15 pounds

Question: does neurontin prevent nerve damage?...or is just for pain? my doctor prescribed neurontin to me because i have desmoid tumors that encase my sciatic nerve. it is pretty painful and annoying. Lately i 've been feeling a lot more numbness in my leg, but I haven't taken any of the neurontin and I don't want to if all it does is stop the pain ( i don't like side effects). when i asked my doctor if it prevents further nerve damage he said yeeess, but extremely hesitantly so it made wonder and when i asked more questions about the drug he really wasn't sure, i guess that's not his expertise

Answer: I wouldn't take it if it causes nerve damage. As for the pain- you could always try heroin. I hear it does wonders.