Get the facts on Melanotic Neuroectodermal Tumor treatment, diagnosis, staging, causes, types, symptoms. Information and current news about clinical trials and trial-related data, Melanotic Neuroectodermal Tumor prevention, screening, research, statistics and other Melanotic Neuroectodermal Tumor related topics. We answer all your qestions about Melanotic Neuroectodermal Tumor.
Question: Has anyone ever encountered "Melanotic Neuroectodermal Tumor of Infancy" or know of someone who has? There are very few cases of this cancer even being reported or documented since 1918. Has anyone ever encountered this type of cancer personally or know of someone who has? My son is 21-months-old and is currently undergoing chemo for the disease and reacting well so far to the treatment. Just wondered if there are others who have had experience with it or not. From the stats that we have seen so far from research, not many survive.
Answer: Talk to these people if you have not already:
http://www.rarediseases.org in the US
http://www.cancerbackup.org.uk in the uk
Question: ?Ever hear of Melanotic Neuroectodermal Tumors Of Infancy? My son was born with these rare tumors, Melanotic Neuroectodermal Tumors of Infancy. He is seven now and I have never met or heard of any one else with this condition. All I can find is case studies and medical info. I know all the info about the tumors, but we want to know of some one else who has dealt with or is dealing with this.
Answer: Have you talked to NORD? They will know, or know who to ask.
http://www.rarediseases.org/
