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Langerhans Cell Histiocytosis

Get the facts on Langerhans Cell Histiocytosis treatment, diagnosis, staging, causes, types, symptoms. Information and current news about clinical trials and trial-related data, Langerhans Cell Histiocytosis prevention, screening, research, statistics and other Langerhans Cell Histiocytosis related topics. We answer all your qestions about Langerhans Cell Histiocytosis.

Question: What are your experiences with Langerhans Cell Histiocytosis? I was recently diagnosed with Langerhans Cell Histiocytosis. I've learned that it affects 1-200,00 children and only 1 or 2 per 1,000,000 adults. There is no government funding for this disease. It is like "cancer" although cann't be defined as a cancer because there is know definate proven treatment for it.

Answer: I have no experience with it, nor had I heard of it until now. Check with a University hospital near you and a University that speciliazes in rare diseases. Usually, there are grant programs available for those who are researching diseases and want to get funding for it-those people will be your cutting edge of technology for your health. Best wishes to you.

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