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Ectodermal Dysplasia

Get the facts on Ectodermal Dysplasia treatment, diagnosis, staging, causes, types, symptoms. Information and current news about clinical trials and trial-related data, Ectodermal Dysplasia prevention, screening, research, statistics and other Ectodermal Dysplasia related topics. We answer all your qestions about Ectodermal Dysplasia.

Question: ectodermal dysplasia? I am 25 and I have ectodermal dysplasia. its a condition where a person is born with mouth, skin and hair deformities. luckily I only have a problem with my teeth. Unfortunatly all of my teeth are baby teeth. yep thats right, I have no adult teeth. if I lose my teeth I dont grow permanant ones in thier place. the teeth I have right now are the same ones I had at age 2. does anyone know of any dentists who are looking to use somone as a guinea pig or practice for implants or other elective (but in my case very necesarry) procedures

Answer: I have dental implants and I too have a dental birth condition. Mine however is where I had too many teeth. Between the baby teeth and permanent teeth there are tons of extra teeth. More like bone things made out of tooth material. My conditon is called cleidocranial dysplasia. I have dental implants and the poster before me whether a nurse or not has no clue what those of us who have never had a beautiful smile feels. Getting implants isn't a horrible procedure either. In fact not bad at all. Lengthy? After never having a beautiful smile 5 months to me wasn't lengthy but so very worth it. As to who to tell you to call? Maybe a dental university. They study people with different conditions. My prosthodontists have treated people with your condition as well. I will give you a link to someone who has your condition and you can see what they did for them. Feel free to send me an e-mail.

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