CREST Syndrome

Question: Need help from anyone with knowledge of the disease Sclerderma or Crest Syndrome? My aunt has this horrible disease and it is rapidly killing her. Is there any new treatments or anything I can do to help alleviate the symptoms for a little more comfort. Natural remedies are welcome.

Answer: check out these websites if you havn't already..good luck and sorry to hear the news.. http://www.sclero.org/support/stories/en… www.scleroderma.org

Question: CREST syndrome? Just what is it and what type Dr. do you see for this? My small blood vessels in my hands are dying. Sore's on fingers, nerves are dying also. Skin on hans is becoming tuff like leather. I need to know if someone has han in succes in stopping this?

Answer: C for calcinosis, R for Raynaud's, E for oEsophageal hypomobility, S for Sclerodactyly, and T for Telangiectasia (the CREST syndrome) Please see the webpages for more details on Systemic Sclerosis.

Question: Does anyone out there know anything about illiac crest syndrome? I have been told repeatedly that I have lower sacrum problems yet don't have the classic pain in the sarcral nerve. You know...lower back pain that shoots down your legs and in your hips? Mine is across the crest of my lower back and very stiff. This happened about a month after having my first child when my bones began to settle back into place. Any insight would be helpful.

Answer: The budding PT provided a very accurate response. I have been a PT for 6 years, and I would also like to inform you about a sacroiliac dysfunction (this is what happens with iliac crest syndrome). This is usually a displacement between the sacrum and the illium...two of the bones in the pelvis. Now, many people highly doubt the exsistance of SI dysfuntions, yet when it DOES occur, it is usally in women right after child birth. This is because women secrete a hormone called relaxin that looses the ligagment around the pelvis to allow for childbirth. Unfortunately, it leaves one prone to a displacement between the sacrum and the ilium. It is characterized by pain across the joint, especially when bearing weight (such as standing on one leg) on the affected side. It can, but is rarely associated with pain radiating into the leg. Derrangement syndrome and sacroiliac dysfunctions are two very likely diagnoses.

Question: Can you have CREST syndrome and RSD(Reflex Sympathetic Dystrophy)?? I need answers!!! >_<!!? Hey!!! My doctors are haveing a though time with my Medical case because of the symptoms I have presented. I am going to Duke Medical Reseach hospital any day now (when ever they have a cancelation. I'm on a wating list) my syptoms include: fainting -dizzyness -Headache(after standing up from ither a laying or sitting position) -High Blood pressure (even after being on Nifedipine, asprin, and fish oil for months my BP normaly runs around 160/100 something) -skin discoloration upon cold or stress (blue, white, pruple, and dusky gery color) -Raynaud's phenomenon like features -rashes upon sun exposure in odd patterns (even under my clothes or when I take hot shower -scalley rashes (face, trunk, thighs, and butt) -different rashes in shower (black splotchy all the way up to my thighs sometimes this happens when I'm cold) -vomiting-clubbing and yellowing toenails(my tips of my toenails look like they are pulling away) -chronic pain in feet (tingling and achyness never go away) -rough skin on the tops of my feet( where they trun splotchy black) this occures even when the skin colr is normal -lack of appitie (can't eat much) -unable to sleep well ( get about 4 to 5 hours of sleep) -abnormal sweating (underarms, feet, hands, and sometimes arms and legs) -hair loss -chest pain upon exertion -random feavors -haveing issues concentrating -musclar atrophy in calves and thighs -incerase in feet pain and new pains in hands upon exertion -adema-swelling joints -cracking,popping, snapping of joints -lack of energy -At times looseing the comple ability to walk - right lymthnode in my neck is sowllen -fluttering sensation in chest upon exertion, if I get up too quicky or when i get too hot -lower back pain -neck pain (collarbone region) -high pulse rate 117 at times -abdomenal pain -pain in joints -looseing the prefierial pulses in both feet at times -I can't walk normaly. I walk on my heels. I cant walk with my feet flat. -early signs of depression -mental confusion and disorentation Thats about it. All my 17+ doctors are sending me to Duke Medical Research hospital this fall. I'm only 17 years old and fixing to be a senior in high school this fall. It gets frustrating going to my doctors and all they can do is shrug their sholders at me. I have been atmitted to the hospital and have been rushed multipal times to the ER I also have the skin yellowing that is rougth on the top of both of my feet. I know I don't have cancer b/c of my blood work. My blood pressure drops when I stand up after sitting. Please Help me!!! I know you all must know what is like to be frustrated. I have lost over 20lbs. I eat less than a meal a day!!! I can't continue to live like this much longer!!!! It is driveing my Mum insaine!!!!

Answer: It is possible to have RSD with several different types of other conditions, but by your symptoms you certainly have much more than RSD. The symptoms of RSD are severe burning pain, pathological changes in bone and skin, excessive sweating, extreme sensitivity to touch. All patients do not present all of the symptoms, but the symptom that is most common is extreme burning pain, and extreme sensitivity to touch. RSD does not have many of the other symptoms that you are presenting so seeing the specialist is something that you need to do asap. I know how it is to be so young and having such problems...I'm 15 and have had RSD fro almost 2 years. I would suggest seeing the doctor- you possibly could have RSD, but it is certainly not only RSD if you do have RSD. www.rsds.org is a good website for information on RSD. Good luck!

Question: Can anyone tell me what the test results mean what i could have? Sle, Mctd , scleroderma sjogrens or crest syndrome. My Ana titer test came back adnormal. And the above or possible things i may have. How i found out is i recently lost a baby. Or anyone of these going to effect me ever becoming pregant agin? Thank you advance

Answer: ANAs are found in patients who have various autoimmune diseases, but not only autoimmune diseases. ANAs can be found also in patients with infections, cancer, lung diseases, gastrointestinal diseases, hormonal diseases, blood diseases, skin diseases, and in elderly people or people with a family history of rheumatic disease. ANAs are actually found in about 5% of the normal population. The ANA results are just one factor in diagnosing, and must be considered together with the patient's clinical symptoms and other diagnostic tests. Medical history also plays a role because some prescription drugs can cause "drug-induced ANAs". What is the incidence of ANA in various diseases or conditions? Statistically speaking the incidence of positive ANA (in percent) per conditon is: # Systemic lupus erythematosus (lupus or SLE) - over 95% # Progressive systemic sclerosis (scleroderma) - 60-90% # Rheumatoid Arthritis - 25-30% # Sjogren's syndrome - 40-70% # Felty's syndrome - 100% # Juvenile arthritis - 15-30% Subsets of the ANA (antinuclear antibody) test are sometimes used to determine the specific autoimmune disease. For this purpose, a doctor may order anti-dsDNA, anti-Sm, Sjogren's sydrome antigens(SSA, SSB), Scl-70 antibodies, anti-centromere, anti-histone, and anti-RN.

Question: I have angionomas multiplying all over my body. Does anyone know how to stop this blood vessel multiplication I know there is a syndrome called CREST that I do not want to get, if I can help it. What research is being done in this area, if any? I would appreciate help from any medical professionals or others afflicted with type of skin condition. Thanks.

Answer: Have you seen a doctor yet? Do a web search for it, I'm sure you will find lots of sites about it.

Question: does anyone have raynods? i think i spelled that wrong,,,,,but I have raynods in my fingers.....does anyone know much about this syndrome,,,,,,also called crest syndrome.

Answer: I have Reynaud's syndrome. I wear gloves and thick socks all of the time. I recommend this website: http://www.mayoclinic.com/health/raynaud… It was very helpful for me.

Question: PLEASE help,i have a bump on my iliac crest,right side? i have dysplastic hip syndrome,also known as the common hip dysplasia.im turning 16 soon,as of november.summer of 08 i had surgery on my right hip,summer of 09(this summer) i had surgery on my left hip. on my right hip,this summer...they took out the 3 screws that were located on my iliac(upper wing of pelvic). as i was laying down today,i was feeling my scar from the surgery on my right side. as i was on the bone i felt a bump. i can feel it all around. its attached to something,but im able to feel the whole circular bump. it hurts wen u push on it for a while. any have any idea what this is?http://www.patient.co.uk/images/I110_L.JPG ... heres a diagram. the iliac part is where the bump is

Answer: it could be scar tissue or perhaps you haven't healed completely yet. you said they performed the surgery this summer, so that's a big possibility. call your doctor and ask him/her about it...

Question: Sports Medicine answer key? 1. The hip is such a stable joint because a. the acetabulum is very deep b. the hip socket is covered by thick ligaments c. many strong muscles cover the hip joint d. all of the above 2. The difference between sprains and strains of the lumbar region is that a. the pain from a sprain tends to be localized, whereas the pain from a muscle strain tends to move the length of the muscle, especially when the athlete tries to use the muscle while bending b. the pain from a strain tends to be localized, whereas the pain from a sprain tends to move the length of the muscle, especially when the athlete tries to use the muscle while bending c. There is no difference. 3. The visible portion of a tooth is called the a. crown b. neck c. root d. socket 4. The layers of cartilage that surround the nucleus pulposus of the intervertebral disk is called the a. annulus fibrosus b. annulus pulposus c. nucleus fibrosis d. body of the intervertebral disk 5. The most posterior process of the vertebra is the a. spinous process b. transverse process c. body of the vertebra d. nucleus pulposus 6. How many cervical vertebrae does an athlete have? a. 5 b. 7 c. 12 d. 4 7. The segment of the spine that is attached to the ribs is called the a. cervical spine b. thoracic spine c. lumbar spine d. sacrum 8. Located on the pelvis, this is the socket that the head of the femur articulates with. a. sacrum b. iliac crest c. acetabulum d. glenoid fossa 9. The formation of bone tissue within the muscle is called a. slipped capital femoral epiphysis b. Legg-Calvé-Perthes disease c. Osgood-Schlatter disorder d. myositis ossificans 10. A dislocated hip will often result in ________ of the leg. a. adduction b. external rotation c. internal rotation d. extension 11. Which of the following is NOT a lateral ankle ligament? a. anterior talofibular ligament b. calcaneofibular ligament c. deltoid ligament d. a and b 12. Which of the following muscles or muscle groups is most likely to be strained during activity because it functions at two joints? a. hamstrings b. rectus femoris c. gluteus maximus d. a and c e. a and b 13. If an athlete suffers a disk bulge, it most typically bulges which direction? a. anteriorly b. laterally c. posteriorly d. none of the above 14. A softening or wearing away of articular cartilage at the back of the patella is known as a. patella dislocation b. Osgood-Schlatter disorder c. chondromalacia d. meniscectomy 15. A complete tear of this ligament usually requires surgical reconstruction. a. anterior cruciate ligament b. posterior cruciate ligament c. medial collateral ligament d. lateral collateral ligament 16. A protective knee brace applied to the lateral aspect of the knee is designed to protect which of the following ligaments? a. anterior cruciate ligament b. posterior cruciate ligament c. medial collateral ligament d. lateral collateral ligament 17. The vastus medialis is included in which of the following muscle groups? a. adductor b. abductor c. quadriceps d. hamstrings 18. Which of the following muscle groups flexes the knee? a. adductor b. abductor c. quadriceps d. hamstrings 19. Which of the following ligaments is most commonly injured as a result of a blow to the lateral aspect of the knee? a. anterior cruciate ligament b. posterior cruciate ligament c. medial collateral ligament d. lateral collateral ligament 20. Which of the following ligaments prevents the tibia from moving forward on the femur? a. anterior cruciate ligament b. posterior cruciate ligament c. medial collateral ligament d. lateral collateral ligament 21. When the pressure of the anterior compartment of the lower leg increases, it is called a. anterior compression syndrome b. medial tibial stress syndrome c. anterior compartment syndrome d. shinsplints 22. Which of the following is commonly used to detect a stress fracture of the foot? a. X ray b. bone scan c. magnetic resonance imaging (MRI) d. electrical muscle stimulation e. none of the above 23. An avulsion fracture of the fifth metatarsal is called a a. epiphyseal injury b. Smith fracture c. Jones fracture d. shinsplint 24. Which of the following is considered a principle or quality of leadership? a. integrity b. vision c. competence d. inspiration e. all of the above 25. Which mechanism of injury is the most common for causing ankle sprains? a. excessive eversion b. extension c. excessive inversion d. flexion 26. What term is given when there is a disruption of blood flow of the head of the femur? a. slipped capital femoral epiphysis b. Legg-Calvé-Perthes disease c. Osgood-Schlatter disorder d. none of the above 27. The brain is attached to the spinal cord by the a. cerebellum b. occipital lobe c. brain stem d. temporal lobe 28. The eardrum is also known as the a. auditory canal

Answer: answer to #26 is legg-calve-perthes disease and answer to #9 definitely isn't legg-calve-perthes or osgood schlatters hope that helps I set up a site for people with perthes and those who wish to learn more about it, if you are interested

Question: reaction to whitestrips? I used Crest Premium Whitestrips for the first time today and within a few hours am experiencing the worst stomachache I have had in my life. I have terrible cramping and diarrhea. I also feel somewhat nauseous. I have taken pepto-bismol 3 times and also medication for irritable bowel syndrome and nothing is helping. Has anyone else had this happen to them? It is now about 3 hours that I am experiencing this. Thanks for the answers. I had a hard time getting the top on (it was the first time I used them). It was making me salivate and swallow a lot. I must have swallowed a lot of the gel which must have irritated my stomach. I'm not sure, but maybe if it had gone on easy I wouldn't have salivated as much. I don't think I will use them again because I can't go through this again. Any more advice is greatly appreciated!

Answer: i work in a dental office and we tell our patients that its not a good idea to sleep with their whitening trays in because when swallowed the gel can irratate your stomach and make you have loose bowels. maybe you swallowed some of the gel thats on the strips.