Get the facts on Angioedema Hereditary treatment, diagnosis, staging, causes, types, symptoms. Information and current news about clinical trials and trial-related data, Angioedema Hereditary prevention, screening, research, statistics and other Angioedema Hereditary related topics. We answer all your qestions about Angioedema Hereditary.
Question: Does anyone have experience with a chlld with Hereditary Angioedema? My grandaugter was just diagnosed with Hereditary Angioedema. She's only seven. Anyone have experience with this disease?
Answer: Hi, i have a lot of family members with HAE including myself & there isnt anything they can actually do for kids that i know of, my nephew was put on danazol when he about 8 but his mother took him off it not long after because she didnt like the side affects (and there are many!). your grand daughter should be seeing a specialist at a childrens hospital for this illness, i was diagnosed with HAE when i was 8 and im now 31 & on danazol. its a terrible painful illness & i understand how your grand daughter feels when she's sick.
feel free to contact me anytime :)
Love Melanie xx
Question: Is Stanozolol still available in US pharmacies to be prescribed for hereditary angioedema?
Answer: Yes, with a prescription, in 2 mg tablets, under the name Winstrol. You should be advised that this medication tends to cause a significant rise in cholesterol and should not be taken by anyone who has a history of atherosclerotic heart disease. An alternative that has a cholesterol-lowering effect (so good, in fact, that it is used in Japan as a treatment for hypercholesterolemia) is Furzabol.
Question: anyone else have HEREDITARY ANGIOEDEMA(HAE)? anyone?please help me.whats the symptoms and stuff
Answer: well HAE you will notice very severe swelling after very small trauma. A lot of these people will develop stridor after a cough or their face will swell after a bug bite to look like a balloon... basically you lack an enzyme required to prevent excessive swelling.
1st go to a doc and have this diagnosed for sure
2 stay well away from ACE inhibitors since these could really ruin your day!
Question: Hereditary angioedema - can anybody tell me anything about it that I might not know? I have been doing research as to why I keep getting hives, and weird swellings popping up randomly around my body such as my arms, legs, feet and hands. I have been to the doctors, they can't seem to find anything wrong with me. Then I found out about HAE. I am shocked because almost every symptom presented within the reading I had done describes my problems. I have had problems with my feet for over a year now. At least 4 or 5 times per month, for at least 72 hours per time, my feet swell up so bad and it becomes almost unbearable to walk. I literally have to walk on the sides of my feet, and can't even leave my house. I am sick of feeling like this, and I want answers. Since the doctors can seem to give me none, I am setting out on a joruney to find answers for myself, and then maybe I will have something to present to the doctor for him to go on. Pretty sad that doctors make so much money yet they fail to do their job to really earn what they make. Any information is appreciated!
Answer: There is a new drug that came out last month in Europe and Australia. Not yet released in the US, but apparently, US citizens have been using it. .
