Sarcoidosis

Question: Can paitents of heart sarcoidosis go into cardiac arrest in the hospital? I was wondering if paitents of heart sarcoidosis can go into cardiac arrest in a hospital? Is it still possible to go into cardiac arrest while in the hospital with it? My friend is in the hospital at the moment, and I havn't heard anything about him yet.

Answer: you can go into cardiac arrest anywhere. patients with sarcoidosis can have a heart attack that is different from the "norm" if you will. most heart attacks are caused by blocked coronary arteries. sarcoidosis can cause the heart muscle to get very thick and sometimes it grows over the arteries that supply blood to the heart. if the heart beats too fast it can block off its own blood flow and cause a heart attack. that's what happened to my mother. her coronary arteries were fine but she had a heart attack that they say was caused by the sarcoidosis.

Question: Is there a link between Sarcoidosis and Depression? I got Sarcoidosis in 1993 and since then I have suffered depression, anxiety and lately OCD.

Answer: Sarcoidosis is a lung condition, so I wouldn't have thought that it would be directly related to mental health problems. However, I think that the symptoms you are suffering might exacerbate depression which in turn exacerbates OCD. Go to your GP and see if he can help.

Question: Is anyone familiar with jaw pain in relation to Sarcoidosis? My jaw has been in absolute agony for a week. I went to the dentist who checked out my teeth and all was clear. He did think I might have ground my teeth in my sleep and now have TMJ. However I do have Sarcoidosis, and have been reading that sarcoid can effect your jaw, particularly salivary/parotid glands. Does anyone here have experience with this effect of Sarcoidosis?

Answer: Possible. See your internist.

Question: Is it just me or do they always mention sarcoidosis in House when they're doing the differentials? I've tried pretty much everything short of watching every single episode to try and figure out if sarcoidosis is in every episode but to no avail. Does anyone else know?

Answer: Good point.

Question: Does anyone else out there have Sarcoidosis and Bipolar Disorder? I have Sarcoidosis in my lungs and skin. I've read that I can affect your nervous system. I'm wondering if I should seek a specialist to see if it's in my nervous system.

Answer: Bless your heart! May the Lord heal you! Pain many times leads to depression. I know Bipolar illness sometimes goes from one extreme to the next. But I am sorry, I do not know anyone who has both. There is good reason why you should see a specialist anyway. Perhaps one will have the breakthrough you need. God bless you and good luck! http://www.health.am/psy/more/depression-common-in-sarcoidosis-patients/

Question: What is your experience with Sarcoidosis? I was recently diagnosed with Sarcoidosis and am wondering what others experience has been after being diagnosed. I have found that I am getting sick quite easily, basically catching every little bug that is going around and then some!

Answer: Hi, I do not have sarcardosis, but run an online support group for people with autoimmune diseases. From what I researched and already knew about this illness I know that it mainly attacks the lungs, and unlike most autoimmune diseases, usually does not last forever, with treatment it may last about 24-36 months. It seems that you are getting ill from the illness itself, but possibly the treatments that you are on for it. My guess is you may be on drugs such as prednison, methotrexate,Rheumatrex, Trexall , or a medrol pack or a combo of these drugs. all which supress the immune system. making a person much more suseptibale to infection. Including colds, flus, viruses, even allergies. which once finished with treatments after 5-6 months your body should return to a normal immune function, and not be so easily suseptiable to those viruses and bacterial infections. Many people on these drugs, do tend to get ill easier then those who are not ill and not on them. Also over time, your body may build a tolerance and not catch every little bug, and make you ill, even while in treatment. But to get rid of the Sarcardosis, you do need these medications, and any other treatments your Dr has percribed. So you can get rid of this illness. Right now your own body has produced anti-bodies that are attacking themselves causing the Sarcardosis. But it wont be forever. I know MTV ex VJ Duff had it, and was rather ill for awhile. She made a full recovery within 2-3 years. And was happy she went through with the treatment, even with the side effects and discomport, she said it saved her. I do own a online message board/support group for those with autoimmune diseases, who need answers and support, if you feel like you need some help for now, we can help with research and support, and a lil craziness (a funny bunch). Also a smart bunch. I am also going to include the link that I got some of the information for Sarcoidodis from. I hope this helped you understand why you are catching everything, but also helps you realize that while difficult it will not last forever, like most chronic autoimmune diseases Good Luck Chris

Question: For an 39 AA male who has serious Sarcoidosis in lungs& a history of smoking- can this turn into lung cancer? He has dropped almost 50 pounds in 6 months and has had sleep apnea but this has went away. He is very weak and tired all the time. Problems and pain while sleeping at night. He has been dealing with the lymph nodes and chronic chest pain symptoms. There was a time when he had a severe cough that wouldn't go away. He doesn't like to go to the doctor, so when his doctor said that he needed another chest xray, he didn't go. It's been years since his last chest xray. He smoked for about 15 years, quit for a few years, started again, and now it's been over a year since he last smoked. We believe that he's afraid to hear that he has lung cancer because the Sarcoidosis has spread to his eyes, lungs, and now his bones. His eyes have gotten better, but he looks very sick. At night he breaks out in sweats, and my question is if this sounds like lung cancer or an advancement from Sarcoidosis? Has anyone else known someone's Sarcoidosis to turn into lung cancer?

Answer: Sarcoidosis is an inflammatory, autoimmune disease and is not associated with development of lung cancer, although some of the symptoms may resemble lung cancer in it's advanced stages, especially in stage IV sarcoidosis. It can be a systemic disease causing a lot of pulmonary/respiratory difficulties. Having said that, since this man has a history of smoking, it would not be unthinkable for lung cancer to have developed independent of his sarcoidosis. Certainly, appropriate evaluation by a physician and work up is recommended.

Question: Does anyone know of any herbal/natural remedies for Sarcoidosis? Hi, I am 39 and was diagnosed with Sarcoidosis about 2 years ago. Of late I have felt the symptoms becoming worse again. I was given steroids before but don't like the side effects. Can anyone help me find an effective alternative to prescription medicines?

Answer: I do not have the answer for you but am going to give you a sight to look at. Go to the Encyclopedia of Natural Healing online, or most health food stores have a copy as a reference. Also ask the resident nauropath at Straussherbco.com. I know nothing of your illness but highly reccomend that you start here and then go to your local health food store for reccomended products. Also put a filter on your shower, and use bottled water for everything else. This is available at your local water store. On general health alone this is good advise. Chlorinated water causes more harm than your can realise. Good luck. Harvey.

Question: Can anyone with Sarcoidosis help me understand this disease? I was recently diagnosed at Mayo Clinic with Pulmonary Sarcoidosis. It initially caused many issues like HSP (vasculitis), weight loss and fatigue. Can anyone tell me what the long term outlook may be. I am currently on Prednisone for 6 months and will do scans every so often. Thanks

Answer: It is still unknown what causes this disease, there is much research being done, however, prednisone seems to be the treatment of choice to reduce the inflammatory condition of the lungs which causes scarring and fibrosis resulting in a restrictive lung disease condition. Check out wikipedia link to start. Understanding and dealing with this disease is tough, I suggest support groups , this from close personal experience, Blessings and courage to you.

Question: I am looking for journal articles about respiratory sarcoidosis? Could someone point me in the right direction. I seem to be a little computer illiterate and am having trouble locating journal articles but I find plenty of websites. Thanks! I need journal articles that appear in print for a research paper. I cannot use more websites.. Thanks!

Answer: Do an online search in http://www.yahoo.com or http://www.google.com and type in "respiratory sarcoidosis articles" and maybe some articles will come-up and you could look for them in a library or something. If you mean online journals, just do the search along with adding "online" or something similiar.

Question: Sarcoidosis? Does anyone have any experiance with having sarcoidosis in the lungs and having it spontaniously heal on it's own? I have been diagnosed and have been told this sometimes happens?

Answer: It is very difficult to say. I have only had a few patients who have had this illness in their lungs. I have never heard of it healing or going away on it's own. I am sorry.

Question: anyone know a specialist in cardiac sarcoidosis? Don't want a lung specialist, or a cardiologist. Just someone who really specialises in cardiac sarcoidosis.

Answer: The best manner I know of is to search the international database at www.webmd.com-God bless.

Question: has anyone ever got socail security disability for sarcoidosis? will a lawyer help? after you are denied once does your chances get better on first appeal? if you have to go to the judge with your case are your chances better and how long from start of case until you see a judge?

Answer: Never waste your time trying to get Social Security yourself. If you have the medical records to back your disease, go see a Social Security lawyer and let them handle it for you. That way, you will probably get the SSI if you are deemed sick enough. Sarcoidosis is nothing to sneeze at. If you have it and you can't work, you will get your SSDI.

Question: Is multiple sclerosis and sarcoidosis in the same disease famiy?

Answer: Multiple sclerosis is an autoimmune disease -i.e, it are caused by the body attacking it's own cells. The cause is not known but certain viruses are thought to be involved ( not proven ). It involves the nerves and can have differing patterns of onset and progress. Since it is an immune mediated reaction, the treatment is mostly to modulate/lessen the immune respone with medication such as steroids. Sarcoidosis, on the other hand, is a totally different disease. It is a form of granulomatous infalmmation, characterised by the formation of lumps of tissue - granulomas in different organs of the body - typically lungs, lymph nodes. The cause of the inflammation is not known. So esentially they are not in the same family of diseases.

Question: I am trying to start a fundraiser for a disease called sarcoidosis? I started making homemade candles 4 cause.

Answer: That's a great idea and it's wonderful that you're helping out for those with such an overlooked disease. God bless and keep up the amazing work!

Question: Is anyone familiar with sarcoidosis who can tell me the symptoms, treatments, etc. when it affects the lungs? I want to know if there are any known treatments that work and just how serious of a disease it is.

Answer: http://www.stopsarcoidosis.org/sarcoidos… This site should get you started. God bless.