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Ehlers-Danlos Syndrome

Get the facts on Ehlers-Danlos Syndrome treatment, diagnosis, staging, causes, types, symptoms. Information and current news about clinical trials and trial-related data, Ehlers-Danlos Syndrome prevention, screening, research, statistics and other Ehlers-Danlos Syndrome related topics. We answer all your qestions about Ehlers-Danlos Syndrome.

Question: I have just been diagnosed with Ehlers-Danlos syndrome (joint cartilage) should i stop playing sport? Diagnoses is Ehlers-Danlos Syndrome of thecartilage joint. I am worried although i have played sport most of my life i recently suffered from a dislocated jaw whilst playing soccer which lead to my diagnoses. Is it worth the risk? Are there any other suffers that enjoy sport? And can i make playing sport safer?

Answer: The classification you give - of the cartilage joint - is confusing. Were you give a type, such as hypermobility or classical? If your symptoms are primarily joint related, you might want to consult with a physical therapist to make sure your joints are strong. The PT would also be able to give you exercises to maintain the strength you currently have. I have played sports my entire life and have EDS, so it is possible. I have to brace my weaker joints and limit both the level of hard physical contact and the amount of time I spend running. Your situation will be different, so pay close attention to any aches or pains - no matter how minor - make changes your body says are necessary and find a doctor or therapist who is willing to work with you so you can stay active.

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