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Tourette Syndrome

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Question: Tourette Syndrome? My 11-year old cousin has a more mild case of Tourette Syndrome. His parents are in denial that he has it and are not willing to treat it or seek counseling. I have done my research, and while he does not have a problem with his speech or blurting out words, he consistently has ticks, and he snorts, whistles and is always twitching and has rapid bodily movements. If you have any experience with Tourette Syndrome, might you be able to help me? I would appreciate any information you might be able to provide or ways he and his family can get help. Thank you in advance.

Answer: My 11 year old son has Tourettes, OCD and ADHD. The best thing you can do is educate yourself (you have done this, kudos to you!) and others. The parents are making the situation worse by denial. Education about the condition is of utmost importance! The more you and those who love him understand, the better the child's chances of a successful life. The child needs to feel safe at home in an environment where he can tic without comment from others. The people around him need to love him unconditionally. This is not to say that the TS may be used for an excuse. But the child needs to know that his family loves him no matter what. I have found that while in public, if I treat my son in a "normal" manner that people generally follow suit. At home, he is loved and respected just like all members of our household. He has chores and homework just like everybody else. His case is moderate and is very mild with the medicine. Counseling may not be necessary, unless the parents feel they need it in order to come to terms with this condition that will not be going away. Tourettes is lifelong and there is not a cure yet. The TSA web site mentioned in the previous answers is very beneficial. This is a great book that will help: "Children with Tourette Syndrome, A Parents Guide" Special Needs Collection, by Tracy Haerle. I enjoyed this book too: "Front of the Class, How Tourette Syndrome Made Me the Teacher I never Had", by Brad Cohen Please feel free to contact me through this site.


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