Get the facts on Neurosarcoidosis treatment, diagnosis, staging, causes, types, symptoms. Information and current news about clinical trials and trial-related data, Neurosarcoidosis prevention, screening, research, statistics and other Neurosarcoidosis related topics. We answer all your qestions about Neurosarcoidosis.
Question: Does anyone know of an effective way to diagnose and treat Neurosarcoidosis, other than a brain biopsy? I have suffered this disease seven years, but no tests have proved in conclusively. I take massive doses of steroids and Im desperate to find an alternative.
Answer: This question is SO far beyond the scope of Yahoo! Answers users I wonder why you even bothered asking. Go to a specialist. They have the training an experience to answer your question more effectively than a high school student who did a 30 second Google search and posted the first thing that came up.
Question: What is the likelihood of surviving a bout with neurosarcoidosis? My mom has it really bad.
Answer: A fatal outcome is not likely.
Treatment
Neurosarcoidosis, once confirmed, is generally treated with glucocorticoids such as prednisolone. If this is effective, the dose may gradually be reduced (although many patients need to remain on steroids long-term, frequently leading to side-effects such as diabetes or osteoporosis). Methotrexate, hydroxychloroquine, cyclophosphamide, pentoxifylline, thalidomide and infliximab have been reported to be effective in small studies. In patients unresponsive to medical treatment, radiotherapy may be required. If the granulomatous tissue causes obstruction or mass effect, neurosurgical intervention is sometimes necessary. Seizures can be prevented with anticonvulsants, and psychiatric phenomena may be treated with medication usually employed in these situations.
Long-term treatment is usually required.
Question: Can a history of NeuroSarcoidosis predispose the patient to developing mental health issues ?
Answer: Neurosarcoidosis generally causes either no symptoms or clear neurological symptoms rather than psychiatric symptoms. The range of symptoms that could occur very much depends on where in the brain the sarcoid lesions are, so the potential range is huge but it is unlikely that any individual patient would suffer from multiple neurological defects.
Some more general psychiatric effects can occur, such as reduced judgement, fatigue, sleep disturbance, or confusion. But the condition does not increase the probability of patients developing standard psychiatric disorders such as manic depression or schizophrenia.
If you yourself have neurosarcoidosis, and you have any concerns, you should see your physician, or preferably a neurologist, for an MRI scan and other investigations to look into it further.
