Get the facts on Multifocal Motor Neuropathy treatment, diagnosis, staging, causes, types, symptoms. Information and current news about clinical trials and trial-related data, Multifocal Motor Neuropathy prevention, screening, research, statistics and other Multifocal Motor Neuropathy related topics. We answer all your qestions about Multifocal Motor Neuropathy.
Question: My husband has Multifocal motor neuropathy. We live on the North Shore in Vancouver, BC. We need a doctor.? He has a neurologist-but we need a family doctor that is knowledgeable about his illness. I need help. His neurologist is not very helpful and he is fearful that if he tells her about the leg pain she will stop the IVIG treatments. We need more information and what if anything we can do.
Answer: GET A DOCTOR,
IDIOT
Question: Anyone here have or know of Multifocal Motor Neuropathy? My son has been diagnosed with their rare central nervous condition. His symptoms are similar to ALS and my disease Myasthenia Gravis. He fatigues, numbness in varous parts of his body like hands, feet, etc.
Answer: There is quite a bit of info on the web about this. Unlike ALS, MMN usually responds to treatment with intravenous immunoglobulin (IVIG) or cyclophosphamide, even after many years of duration. As you probably know, ALS (motor neuron disease) is usually terminal but MMN is definitely not, and is treatable, which is very good news for your son. Try to get as much info as you can from health providers and the web. Good luck.
