Craniosynostosis

Question: Craniosynostosis? Does anyone know where I can find a video of how the surgury procedure is done on a child with Craniosynostosis also known as Synostosis?

Answer: try youtube

Question: Are there any risks to waiting to have surgery for Sagittal synostosis craniosynostosis? My daughter is almost 7 months old and they surgeons we met with can not get her into their schedule until 9months of age. Is there any risks to waiting this long? What about increased ICP? What about brain damage? What about brain growth and development?

Answer: You are the only advocate your child has. Is it possible that you could call other facilities and ask other doctors? Don't be afraid you're being a "pest". It's a parents job to be a pest! If any of these surgeons were in your position, they would do the same. Did you ask you childs' doctor the same questions? Have you checked out the Childrens Craniofacial Association? http://www.ccakids.com/ It appears that having the surgery done before the age of one year improves the outcome. So you've still got that bit of time on your side. But again, ask your doctor/surgeon about your daughters particular case and let them know you're concerned about waiting so long. Hope everything goes great for her! All the best!

Question: Craniosynostosis? Does anyone else have a child with this that didnt have to have surgery to correct it? I am wondering if I need to get a second opinion on my daughters condition. Her doctor said that she wouldnt need surgery. She is now 8 and has pertruding forhead and some droopiness of her eyes. I think that she is to old for the surgery but I am unsure. I took the doctors word for it when he said she didnt need the surgery. But, now that she is older and I see it more, I am concerned that it will cause problems for her later in life socially.

Answer: Definately get a second opinion. I don't know how old a child can be and still have the surgery. Did the doctor ever mention using molds to shape her skull? Don't wait any longer about seeing another doctor. If something can be done it most likely will have to be done soon.

Question: my daughter has craniosynostosis of the metopic suture and we didnt have the surgery? she is six years old now and she is beautiful. however after reading some things here on answers i am very worried that she may develop problems.she also has situs inverses reverse organs but we have no problems due to these anomolies other than fluid behind her eardrums and we can correct that with tubes.she is still small for her age she is 6 and 41 inches tall and 40 lbs.is there anyone who didnt have the surgery with no problems from craniosynostosis

Answer: Here is some info you can use.Jorge Posada of the New York Yankees son has craniosynostosis and he and his wife have devoted a foundation for this.You might want to check out their web site.www.jorgeposada.com/foundation.html… Bless.

Question: Have you had a child with craniosynostosis? Premature closing of the skull. My son's head is in the 5th percentile of measurments.

Answer: I personally have not but know 2 friends whose children did have it. I don't know where your located but here are hopefully some helpful links..

Question: craniosynostosis? Does anyone else have a child with this that didnt have to have surgery to correct it? I am? wondering if I need to get a second opinion on my daughters condition. Her doctor said that she wouldnt need surgery.

Answer: I don't have a child with craniosynostosis, but I'm doing research on it. How old is your daughter? At the moment craniosynostosis can only be corrected by surgery to open the fuse sutures in her skull so that her brain can grow normally. Surgery is usually done when the infant is 3-4 months. Without surgery to reopen the fused sutures, pressure on the growing cerebral cortex may have a seriously detrimental effect on the child’s intelligence. I wish you all the best for you and your daughter.

Question: if craniosynostosis is hereditary, then how did my son get it when no one in our families have it? i don't have it my husband doesn't have it, neither does anybody in his family or mine .

Answer: This is much too complex to answer thoroughly in Answers!, but one possibility is that both you and your husband could be carriers, each possessing a recessive gene for the condition. If at conception the sperm cell and egg cell each carry the recessive gene and they "get together" that way, the baby would carry both genes and, thus, the condition. The condition might never have shown up in either family simply because the recessive genes did not get the chance to do what they do, even though they might have been there for generations. With today's technology, you and your husband could be tested for the gene, but that might be expensive. It would give you something to think about for future children. As noted, there is much more to this than this format allows, but here is a link to a site that will give you much information. http://www.chw.org/display/PPF/DocID/218… We wish you the best...........always.

Question: why does craniosynostosis happen in new borns?

Answer: What is Craniosynostosis? Craniosynostosis is a birth defect of the brain characterized by the premature closure of one or more of the fibrous joints between the bones of the skull (called the cranial sutures) before brain growth is complete. Closure of a single suture is most common. The abnormally shaped skull that results is due to the brain not being able to grow in its natural shape because of the closure. Instead it compensates with growth in areas of the skull where the cranial sutures have not yet closed. The condition can be gene-linked, or caused by metabolic diseases, such as rickets or an overactive thyroid. Some cases are associated with other disorders such as microcephaly (abnormally small head) and hydrocephalus (excessive accumulation of cerebrospinal fluid in the brain). The first sign of craniosynostosis is an abnormally shaped skull. Other features can include signs of increased intracranial pressure, developmental delays, or mental retardation, which are caused by constriction of the growing brain. Seizures and blindness may also occur.

Question: anyone know about Craniosynostosis ? my grandson had crainoplasty surgery 13 months ago because of Craniosynostosis .He has now devloped a soft spot on top of his head that wasn't there 5 days ago.What could of caused this?

Answer: Craniosynostosis is a medical condition in which some or all of the sutures in the skull of an infant close too early, causing problems with normal brain and skull growth. It can result in craniostenosis, which is the skull deformity caused by the premature closure of the cranial sutures. Also intracranial pressure can be increased. Contents [hide] 1 Normal skull development 2 Pathophysiology 3 Treatment 4 Epidemiology 5 External links 6 See also [edit] Normal skull development In humans, the adult skull is normally made up of 28 bones. The flat bones making up the cranial vault are joined together by sutures: rigid articulations permitting very little movement. At birth, the human skull is made up of 45 separate bony elements. As growth occurs, many of these bony elements gradually fuse together into solid bone (for example, the frontal bones). The bones of the roof of the skull are initially separated by regions of dense connective tissue. At birth these regions are fibrous and moveable, necessary for birth and later growth. Larger regions of connective tissue, called fontanelles, occur where certain bony elements meet. As growth and ossification progress, the connective tissue of the fontanelles is invaded and replaced by bone. The posterior fontanelle usually closes by eight weeks, but the anterior fontanelle can remain up to eighteen months. [edit] Pathophysiology When one or more sutures fuse prematurely, skull growth can be restricted perpendicular to the suture. If multiple sutures fuse while the brain is still increasing in size, intracranial pressure can increase. Primary craniosynostosis is believed to be a result of primary defect in the mesenchymal layer ossification in the cranial bones. Secondary craniosynostosis is a result of primary failure of brain growth. A child wearing a cranial band.[edit] Treatment Surgery is typically used to separate the fused sutures of the skull as well as to reshape the skull. Without surgery, blindness and mental retardation is a typical outcome. To treat the cosmetic troubles, a combination of orthodontic and orthognathic surgery can be used to relieve some of the midface deficiency. Typical surgery begins with a zigzag incision from ear to ear across the top of the head. The scar left by this type of incision makes the hair look more natural than that left by a straight incision would. Raney clips are typically used to curtail bleeding, as cauterization would not result in an aesthetically pleasing result upon healing. Once the scalp is peeled back, pilot holes are drilled through the skull. These pilot holes are then connected, separating the skull into several pieces. Once reshaped, these pieces are placed back on the head (typically in an altered configuration) and held together by a combination of dissolving sutures, plates, and screws. These plates and screws are typically composed of a copolymer comprised of polyglycolic and polylactic acid and will break down into water and carbon dioxide within a year. Demineralized bone matrix or bone morphogenetic proteins are often used to fill gaps left by the expanded skull, encouraging the body to grow new bone in a process called intramembranous ossification. Once the Raney clips are removed, dissolving sutures are again used to close the incision. hope this helps you out *****

Question: Can you inherit craniosynostosis? i was just wondering if my boyfriend and i stayed to together long enough to get married and have children if out children have the possibility of inheriting craniosynostosis? if so whats the percentage? thanks x

Answer: From Children's Hospital Boston: Craniosynostosis occurs in one out of 2,200 live births and affects males twice as often as females. Craniosynostosis is most often sporadic (occurs by chance). In some families, craniosynostosis is inherited in one of two ways: - Autosomal recessive means that two copies of the gene are necessary to express the condition, one inherited from each parent, who are obligate carriers. Carrier parents have a one in four, or 25 percent, chance with each pregnancy, to have a child with craniosynostosis. Males and females are equally affected. - Autosomal dominant means that one gene is necessary to express the condition, and the gene is passed from parent to child with a 50/50 risk for each pregnancy; males and females are equally affected. I had it but neither of my parents had it either. and honestly, it's nothing to worry about. Surgery fixed mine