Chronic Myelogenous Leukemia

Question: I have just been diagosed with chronic myelogenous leukemia.? I have just been diagosed with chronic myelogenous leukemia. I also just had a baby 3 weeks ago. What are the chances that she that or a similar bleeding disorder? I have not been exposed to any radiation. It actually came from a previous diagnosis, or perhaps a mis diagnosis (?) of Disseminated Intravascular Coagulation (DIC) a blood disorder that has some of the same symptoms and the potential to go into a form of leukemia if it is not treated or incorrectly treated.

Answer: CML is NOT hereditary; it is an acquired problem. Historically it was difficult to control long-term, as it transformed into acute leukemia (blast crisis). Currently, a new class of drugs (tyrosine kinase inhibitors) have transformed the treatment; most patients are placed into a molecular remission by one of these drugs, meaning that to the best of our ability we cannot detect evidence for the disease. Does it mean cure? Not sure yet, but maybe for some, or at least control of the disease for a long time(? for life, like high blood pressure- it is not cured, it is controlled). Acai berries have shown no such benefit as quoted above. They may taste good (or maybe not), but please don't put your faith in only that. DIC did not lead to or cause this; it is possible DIC could be caused by CML or its complications however. Given the way these drugs have transformed the care of CML patients, it is a time to be optimistic about future treatment and expectations. God bless, best wishes

Question: If I have Chronic Myelogenous Leukemia and its in recession, can I still get a tattoo? I started a tattoo before I got diagnosed and I would like to get it finished.

Answer: You should be fine, as long as you are in *remission* and they use sterile technique. However you are assuming some risk of course by having someone stick you with a hypodermic needle, such as hepatitis, AIDs, other blood-borne communicable diseases. Risk is small but real. Interestingly, prior studies have shown that the white blood cells which fight infection in patients with chronic-phase CML are rather hyperactive.

Question: Is Chronic Myelogenous Leukemia a genetic abnormality or a genetic disorder?

Answer: all leukmias are a form of genetic mutation. It is generally not considered hereditary, but they are finding links suggesting it may be in some cases atleast. Here is a link that talks a lil about the cytogenetics. Its a lil complicated, so.. http://atlasgeneticsoncology.org/Anomali…

Question: Anyone have Chronic Myelogenous Leukemia? Anyone with Chronic Myelogenous Leukemia? I'm a 14 year old girl with it and I want someone to talk with thats going through it as well. Its so rare and I cant find anyone! Also, any good chat rooms or message boards online specifically for cml? I can't find any. I would love someone to talk with about this because I want to talk with someone who can relate with me. Thanks for the help!

Answer: I have it, I'm 15. I once found a message board about it, but i don't remember the name, i've never really been into the message board thing. Edit: i found the forum, you can ask questions, talk to other people on there etc. http://cancerfocus.org/forum/forumdispla… you can also use this, it's a support group, there's one specifcally for CML. http://www.acor.org/leukemia/support.htm…

Question: What type of disorder is Chronic Myelogenous Leukemia? is it a mutation (chromosomal or gene), is it recessive or dominant, or nondisjunction?

Answer: I don't know, but this site will have all the answers: http://www.leukemia-lymphoma.org/hm_lls Best wishes

Question: Chronic Myelogenous Leukemia?\? What does Chronic Myelogenous Leukemia do to your body? And why is it harmful for you?

Answer: Cancerous white blood cells (WBC) will crowd out other blood cells. This has obvious effect on many of life's functions. Cancerous WBC will accumulate in organs such as the spleen. Poorly functioning / non-functioning WBC cannot fight infection. There are other symptoms/conditions too. These symptoms appear or become more obvious in the accelerated and blast phases.

Question: Are there any other effective treatments for chronic myelogenous leukemia without using chemotherapy? just like using just affordable medicines yet effective ones...

Answer: At our hospital, we are treating about 200 patients who have CML. Like them, she might be able to avail of free Imatinib (Gleevec) through GIPAP and the kindness of Novartis Oncology and The Max Foundation. Visit their website: https://www.maxaid.org for details. The website also has links to CML support groups. Good Luck!

Question: Questions about chronic myelogenous leukemia - CML- and people taking Gleevec as possible.? I would like to get as much information about chronic myelogenous leukemia and patients taking Gleevec as possible. How long ago were you diagnosed? What treatment are you on? (Gleevec, Chemo, Bone Marrow etc) How old are you now and how old were you when diagnosed? What are some side effects youve noticed from taking Gleevec? Are you or do you feel depressed? Do you drink alchohol while on medicine... Life expectancy of patients with CML.... Any and all info would be much appriciated.

Answer: 2 years ago Gleevec Currently 30, I was 28 Vomitting & headaches I did, and I still do a little No It depends

Question: Is anyone taking Gleevec for Chronic Myelogenous Leukemia? How is it working for you? I've been taking Gleevec 400 mg. since 03-01-06, have all the side effects and am almost bauld on top of my head. I think I look like I'm alot older than I am since I've been taking Gleevec. I have a brother that is a match if I ever need to have a bone marrow transplant (which I hope I don't) and most of my family doesn't care if I'm sick at all. I catch every bug around and colds easily, I wear a mask as much as I can to help prevent this. My step son and his wife just can't get it in their head that I can't babysit when their kids are sick, to them they're not sick but when they get to my house they are coughing and have a runny nose and I have it a couple of days after being around the kids. I think I'm gonna start telling them I can babysit if they give me enough money for a dr. visit and perscriptions 'cause I always end up at the dr. office after being around their kids. Is that being mean of me? Does anyone understand where I'm coming from?

Answer: I wish I had any good to contribute, I think you are not being mean, because its not only the illness or the cost, one of these colds may get you to the ER or hospital one day. You are right to point out to them that you can not be around sick kids at all, good luck with your treatment

Question: What is the type of inheritance of Chronic myelogenous leukemia (CML)? ? For example is it autosomal dominant, atosomal recessice, or sex linked or ect... thanks in advanced!

Answer: I do not believe it is inherited -- but is acquired (for example, from exposure to radiation, benzene). CML is diagnosed by detecting the philadelphia chromosome -- chromosome 9 and 22 fused.