Chronic Pelvic Pain

Question: Does anyone have experience with unresolved chronic pelvic pain? I've had chronic pelvic pain for years. Several trips to the ER in excruciating pain. Finally dx'd w/adenomyosis and endometriosis and had my uterus and right ovary removed about 1.5 yrs ago. I'm now experiencing the same pelvic pain as before. I've had ultrasounds, CT scans, colonoscopy, but as of now have not found the cause. It's horrible and makes daily life very difficult. I don't sleep much from the pain.

Answer: Have you read "Headache in the Pelvis" by Anderson? The fourth edition has quite a bit more about women's pain. It might be available at your library.

Question: Any tips for chronic pelvic pain in women? My mother has severe Pelvic pain since her ablation is there any she can do other than pain pills?

Answer: She may be able to try something like a heating pad or even consult a physical therapist to see if there might be something out of alignment, but because of the pain she's still having since her procedure I would recommend that she see her doctor again for further evaluation of the situation to see what they think could be going on.

Question: What causes chronic pelvic pain? I have been suffering from chronic pelvic pain for several years, have had 3 surgeries for this, and still suffer daily from this. I am even thinking I have PCOS. I am ready to change Gyne's as I am not getting any relief and am tired of living this way!

Answer: That's a difficult question I don't think anyone really knows and I think it kinda also depends on your symptoms. Personally I reckon it's caused by Trigger Points in muscles (http://en.wikipedia.org/wiki/Trigger_point) and an inbuilt pelvic focus for stress. There's a good book called The Trigger Point Therapy Workbook Second Edition by Clair Davis which gives a good introduction to Trigger Points. Also http://www.pelvicpainhelp.com by Dr. David Wise is a pretty good site. It's targeted more towards men but has a growing female section (http://www.pelvicpainhelpforwomen.com/). Apart from that hot baths, stretching and relaxation are good for it. I've had this for about 3 years 365 days a year. The first year was absolutely f*$kd up but after finding help from these sites (my doctors sucked) I've improved a lot. Hopes this helps you with your pain.

Question: What are some causes of chronic pelvic pain and could they be related to irregular periods?

Answer: Endomirtiosis. its a cellular disease with no cause and no cure,1 in 5 women have it. how it works is whenever a woman starts her period radical cells from the lining that are supposed to be expelled from the body via the period actualy go to other places throughout the body. they then turn cling to organs and turn into scar tissue,causing many issues. the commen symptoms are: 1. Painful periods 2. heavy/irregular periods 3. pain during sex 4. headaches 5. low grade fever right before/during period 6. fatigue and many more but some women have no symptoms at all.doctors tend to miss this disease if they are not looking specificly for it.but time is a factor as the longer you have it the worse the symptoms get and it eventualy causes infertility if gone untreated.

Question: Does anybody know individuals or organisations that can offer free medical care for chronic pelvic pain? I have suffered from pelvic pain for about 5 years now. Doctors tell me I have chronic PID. Sometimes I also have ovarian cysts and bladder pains. I feel like I am not receiving good medical care becuase, medicine is not helping any more. I get too much pain and I believe I need better medical care which I cannot afford. Does anybody have advice for me or is there any other person who is faced with the same problem? Please give me suggestions. I am tired of being sick and I think I need a surgery too.

Answer: no i dont know but u can looking 4 to google.com i'm sure u will find someting if exist if not i cant help you.

Question: how do you treat chronic pelvic pain? this is for my mother she is having chroninc pelvic pain, and she says it feels like a heavy object in her pelvic area, like a hernia, she has been to plenty of doctors but they are not treating her right they jus give her 800mg pain killers, and they said they can't perform surgery becuase they claim my mother is overweight, but one doctor told my mother she needs to get her chronic pain dealt with before trying to loose weight, so can someone please tell me what to do

Answer: Have they considered sending your mom to a physical therapist who specializes in pelvic pain? Many times, addressing muscle inefficiencies, pelvic alignment issues, and muscular restrictions is helpful in relieving this discomfort. I, myself, am a physical therapist, but I do not practice in this arena. Therefore, I have included a website to the pelvic pain society where you may find a therapist near you.

Question: How do I get approved for SSI? I was diagnosed with severe endometriosis, chronic pelvic pain, and depression. I am 29 years old,and I have not been able to work for 4 years, because of the pain. I had a hysterectomy over 2 years ago, and I am still in pain. In fact I have more medical problems, like Interstial Cystitis (IC), herpes, I have a problem being on my feet for long periods, I am on lots of medications-which most of them cause drowsiness; there are times that I have a hard time getting out of bed, because of the pain. I applied for SSI-atleast 3times and each time I was denied; now it is at the point that I meet with a judge, but that takes almost 2 years; I am not getting better, I am getting worse. Some attorneys don't want to waste their time helping me, because of my situation.

Answer: Unfortunately, SSI is not sensitive to Endometriosis and chronic pelvic pain conditions, but they are s-l-o-w-l-y beginning to understand the devastating toll diseases like Endo and IC are taking on women. Your story seems to be on par with others attempting to file for SSI; it seems it takes an average of 3-4 times over the course of a couple of years before it is approved. They try to make so hard that you'll just go away, so don't give up! It looks like you are on course, since you're going before the judge now finally. You might be interested in the following: "SSA Issues Ruling for Evaluating Interstitial Cystitis: The Social Security Administration (SSA) has issued a new Social Security Ruling (SSR) that explains how the agency evaluates disability caused by interstitial cystitis or "IC." Published November 5, 2002, the ruling became effective immediately. It is titled SSR 02-2p, "Evaluation of Interstitial Cystitis." Applicants for disability benefits who have IC (and their advocates) should certainly review the ruling. SSR 02-2p alerts SSA decision-makers to the disabling potential of IC, a relatively rare disorder, and helps doctors of women and men with IC focus on the issues that concern SSA when providing medical documentation for disability claims. SR 02-2p calls IC, "a complex, chronic bladder disorder characterized by urinary frequency, urinary urgency, and pelvic pain. IC occurs most frequently in women (about 10 times more often than in men), and sometimes prior to age 18. IC may be associated with other disorders, such as fibromyalgia, chronic fatigue syndrome, allergies, irritable bowel syndrome, inflammatory bowel disease, endometriosis, and vulvodynia (vulvar/vaginal pain). IC also may be associated with systemic lupus erythematosus." Click to view the text of SSR 02-2p, or look in the Federal Register dated November 5, 2002, pages 67436-67439." Link: http://www.ssa.gov/OP_Home/rulings/di/01… There is also a similar case file available at http://caselaw.lp.findlaw.com/data2/circ… Your best bet is to go armed with valid literature outlining the devastating effects of Endo, IC, etc. and it helps to have an atty. on your side who understands the SSI circus. Maybe the Endometriosis Research Center can help you (http://groups.yahoo.com/group/erc/pendin… There are a few cases where women with Endo have been able to get it, so hang in there and keep trying. Good luck to you.

Question: How do you cope with chronic pelvic pain? Is there a cure?

Answer: It depends on what the cause of the pain is. You ought to go to an experienced MD. Google: mayo clinic>>diseases & conditions>>symptom finder >>pelvic pain...answer questions then submit. Good luck to you.

Question: Anyone suffering from Chronic Pelvic Pain? I've been suffering from Chronic Pelvic Pain for about a year and six months now. I'm 24 and a newly wed and its really taking a toll on me emotionally. The pain has just gotten worse and its seems like the doctors don't care anymore. I've had a laparoscopy and it is Endometriosis...but I didn't know endo could cause such excrutiating pain that I can't do much anymore. I am so exhausted all the time. Most of the time I feel like I don't even have an ounce of energy in my body. Is there anyone going through the same? If so can you please respond to this msg or email me.

Answer: You absolutely must visit http://www.endocenter.org and http://www.centerforendo.com - best places on the 'net for help and hope. There is no cure for Endometriosis, but there are ways to cope - start by talking to others here: http://groups.yahoo.com/group/erc Endometriosis CAN be treated successfully. The CEC (site above) is one place to start learning about excision surgery and how crucial it is to have ALL disease removed from ALL locations. It's entirely possible to do so, but regular gyns don't care enough and don't have the skills to do excision. Check out the CEC and get some hope, also visit the ERC's listserv and home page. Good luck, you're not alone!

Question: Taking depo for chronic pelvic pain, its not working anymore? I'm taking depo for chronic pelvic pain for three months it was working, but know my period has come back and the pain has worsened, i should also note that i had three surgurys, one c-section, a tubal ligation in 2004 then i still got pregnant in 2007 but it was an etopic pregnancy, I sort of feel the doctors are not taking me seriously any suggestions

Answer: Hi Fran. I was in a similar boat until recently. Years of hard and heavy periods. Four c-sections, a tubal ligation, chemically induced menopause, a failed ablation, etc. My big issue, aside from the painfull periods became never ending bleeding. I too felt that at a point the doctors weren't taking me seriously. The kept telling me that I was simply aging, and that I should keep track of my symptoms. Ultimately, I did keep a record of my symptoms for an entire year. Then I shopped around for a FEMALE MD. I truly believe this made a huge difference in the way I was listened to. She immediately started investigating and after much discussion, I had a uterine hysterectomy three weeks ago. It turned out that I had quite the case of adnomyosis and a slight case of endomitriosis. Not to mention my bladder was completely adhered to my uterus. For the first time in years I am pain free and not oozing something. I can only suggest that you find a doctor that listens to you. I changed practices about five times in 10 years. Stay strong. Good luck!