Hirschsprung Disease

Question: I am writing a report on Hirschsprung's disease. What should my thesis statement be? My first paragraph is about causes, the second is on symptoms, and the third is on treatments. I need a sentence that combines all these three subjects.

Answer: The Hertzsprung's disease is very _____ (deadly or contagious or sickening), but there are three ways to distinguish and diagnose this disease. A patient receives the disease by certain causes, and then a doctor diagnoses his symptoms and gives the patient treatment options. It's a bit difficult to do this thesis statement..

Question: Who has a son that has or had hirschsprung's disease? The reason I want to know is because i have a son who has had this and I can help other concern mothers. Thank you. So if your child don't have it then don't answer

Answer: I don't have a child with this. I'm not sure why you want or need the info, but thought the website below may help you. http://www.hirschsprungs.info/

Question: What are the long-term affects associated with Hirschsprung's Disease & surgery to correct it? Other than constipation & short term affects (dilitation, irrigation), are there any long-term affects of Hirschsprungs Disease after a child has undergone a rectal pull-through surgery?

Answer: The NIH says they lead a normal life, they just have some problems with dehydration and diarrhea because their large intestine is smaller than it normally would be, and infections can turn deadly because of the surgical scars. Good Luck. http://digestive.niddk.nih.gov/ddiseases…

Question: Anyone heard of Hirschsprung Disease? I need to know the symptoms of Hirschsprung Disease. I found some stuff, but it wont list symptoms it is a very rare and deadly disease that I do know. Thnx, teri p

Answer: Hirschsprung's disease (congenital aganglionic megacolon) is a birth defect in which nerve cells in the wall of the large intestine do not develop. These nerve cells, called ganglion cells, control the muscles in that area that normally push food and digestive waste through the large intestine. In Hirschsprung's disease, the muscles in the wall of the large intestine do not relax, which prevents waste from moving through the large intestine. This may lead to trapped stool, infection, inflammation, and constipation. Hirschsprung's disease is diagnosed soon after birth in about 1 of every 5,000 newborns. It is more common in males than females.1 What causes Hirschsprung's disease? The cause of Hirschsprung's disease is not known, but the disease tends to run in families (inherited). The incidence of the disease in relatives of those who have it is higher than in the general population.1 Hirschsprung's disease also may occur along with other medical conditions, such as Down syndrome and congenital heart disease. What are the symptoms? General symptoms of Hirschsprung's disease include a swollen abdomen and constipation. The newborn with Hirschsprung's disease may not pass the first stool (meconium) until at least 48 hours after birth. Other symptoms vary depending on the child's age, when the symptoms are recognized, the amount of intestine affected, and the presence of complications. These symptoms may include vomiting, having a poor appetite and refusing to eat, and not growing or gaining weight as expected. How is Hirschsprung's disease diagnosed? A health professional usually first suspects Hirschsprung's disease based on descriptions of your child's symptoms and the results of a physical examination. A rectal biopsy, abdominal X-ray, barium enema, and other tests may be done to confirm diagnosis. Though Hirschsprung's disease is present from birth (congenital), it may not be diagnosed until months or years later. However, most children born with this disease are diagnosed within the first year of life. In rare cases, an undiagnosed or untreated case can become life-threatening. How is it treated? Children with Hirschsprung's disease require surgery to remove the portion of the large intestine that has no nerve cells. The surgery is done soon after the diagnosis is made, often within the first days or month of life. After the surgery, the child may have recurrent constipation or leakage of stool from the rectum. Sometimes these complications require further treatment. Many children will not have intestinal problems that last forever. But most have long-term (chronic) problems with stomachaches, constipation, or stool leakage (fecal incontinence). If long-term problems occur, they are usually mild. Depending on the nature of the problem, treatment may include medicine, behavior modification, biofeedback, cognitive behavioral therapy, or more surgery. Emergency surgery may be needed if a dangerous problem occurs, such as Hirschsprung's-associated enterocolitis (HAEC), an inflammation of the small and large intestines.

Question: Does anyone know any hirschsprung disease support groups?

Answer: Pull-thru Network www.PullthruNetwork.org Founded in 1988, Pull-thru Network (PTN) provides information, education, support and advocacy for families, children, teens and adults who are living with the challenges of congenital anorectal, colorectal and urogenital disorders (such as HD). Services for members includes a quarterly journal, email support group, message board on the website, weekly member chats, lending library, family assistance programs, regional and national meetings and conferences. For more information please see the website or email PTNmail@charter.net. Bonnie McElroy

Question: My brother and I have both had hirschsprung's disease I think I'm Pregnant.? What are the chances my baby will Inherit hirschsprung's disease?

Answer: The chances are obviously there, but still - that doesn't mean it could happen. However, the chances are more likely if the mother is the one with the illness and can pass it to her child. That said, there are lots of things they can do to treat this illness, as I'm sure you know. Are you and your brother able to lead full, productive lives? There are ways they can diagnose and treat it very early, and I would guess that if your child did have it and had to have parts of the bowel removed, it would be all he or she would know from very early on and would just be a part of who they are. It doesn't make it an easier for you, though, I'm sure. I once prepared IV solutions for a child with Hirschsprung's. He was on total parenteral nutrition as his main source of nutrition and even though he would have been able to have solid foods, his mother avoided them, causing strong aversions to solids in his case simply because he was not used to actually eating. From what I could tell, the pharmacist I worked with felt that the mother was unnecessarily shielding him with this illness when he could have gone to have quite a normal childhood, despite his condition. So anything's possible. Try not to get too discouraged and definitely consult with your OB and a geneticist. Good luck to you. http://www.lpch.org/DiseaseHealthInfo/He…

Question: I have hirschsprung's disease from a baby, and im in my last year at school. Help.? Hi, im in year 11 and i have a condition called hirschsprung's disease which basically means not all of my bowels work properly. Anyway, everyday in lesson, my stomach really hurts, almost like ive eaten something bad everyday, like a bad stomach ache would feel to someone. theres nothing really i can do to stop this, due to it being related to the hirschsprung's but im missing out on the lessons etc, because i cant sit in a lesson, while concentrating and my stomach is in agony. anyway my Exams are coming up soon (GCSE) and im worried incase i do bad because i just cant concentrate in lesson with my stomach being so bad. Is there anything i can do to maybe, you know help me. Im in the highest set and am expecting to do good, and i want to, but its extreamly hard to do work, while holding my stomach and feeling sick most of the day. Thanks Nope, the hospital, doctors, no body knows a cure for it, they just sa its the effects which come with hirscyhsprung's and ive got to try and get used to it basically, but i can deal with the pain i suppose, im just worried about not getting a good GCSE grade etc. so i was wondering what the school can do to make me get a good one

Answer: Peter, My heart goes out to you! You have an ailment that I was unaware of. I think that it would be a good idea if you had a regular doctor that you can talk to to help you cope with your disease while you are under stress from school. My background is in massage therapy. I was shown a technique of massaging the tummy (below the belly button) in a clock-wise direction. Just very gentle and slow...pressing in the direction of a clock, stopping and starting in little movements. This massage technique is to help the intestinal track to move along to help a person go to the bathroom. Since your ailment has to do with the intestinal track, and there can be instances whereby your body fails to move waste along, I thought that maybe my suggestion would be helpful. But I am not certain of that. I may be giving you the exact WRONG advice, as I have not been trained to deal with your health problem. Talk with your family doctor (if you don't have a specialist) to see if massage would be helpful, or if there are any natural foods that would help ease your discomfort. I truly can not imagine how you suffer! I sympathize, but I can't know how you feel. But my prayers are with you that you can handle your illness with some degree of comfort, and will be able to outgrow it some day. Perhaps, you can become a research scientist to help conquer this disease in the future? God give you strength and courage. Try to enjoy the rest of your day and don't let these stressful things get to you. Learn to roll with the punches of stress so that your body doesn't react and give you more pain. 092408 3:25 Peter, I read your extra note. If it is a matter of passing a specific type test, the school should work with you to give you a "disability" status, whereby you can receive some tutoring OR you are allowed extra time. I know that they offer that for people with dyslexia (letters in words go backwards, for example). In college, they have a department for students called "Access" which helps special needs students (don't speak English as first language, handicapped in some way and such...). Speak with your principle's secretary and see if there is something they can do to help you be more at ease and make an "equal" grade with the other students. You need to be "on equal ground" to take the test, for example. This would not give you greater advantage, just even out the odds for you. Give it a try!

Question: do i have Hirschsprung's disease? ok this may be a litlle weird question but i think i have hirschsprung's disease. i know all about it cause i looked it up. ever since i was about 3 years old i have always had problems with constipation and had to take laxitives till i was 10 cause i was doing the toilet no problem but jst reacently i have had bad constipation again. taking laxitives only work untill my bowels are empty and i end up constipated again and i can last 8 days without passing anything. i eat alot of fiber in my diet and eat healthly.i have had tests done when i was younger but they never saw anything wrong

Answer: hirschsprungs disease is more worse than u describe ,i doubt it,but a biopsy must be taken to confirm aganglia(absence of nerve ganglions)

Question: How do you pronounce the name of this disease? How do you pronounce the name of this disease: Hirschsprung's disease. Is there anywhere I can get to hear audio pronunciation of it?

Answer: Hirschsprung's (HURSH-sprungz)

Question: Hirschsprung's Disease? My son has Hirschsprung's Disease. The doctor has told us the surgery options and both the ones he told us about had serious risks involved. Does anyone know someone who has had surgery for Hirschsprungs? If so how did the surgery go for them. Thanks....

Answer: I have 2 sons with HD. They both have had a Souave pull thru and are doing wonderfully. My oldest will be turning 2 tomorrow and my youngest is 6 months old. It's hard to digest all the information being given to you now and I'm sure you are feeling scared, but rest assured that HD is a totally manageable disease:0). Best wishes to you and your son!