Hirschprung's Disease

Question: Anyone with Hirschprung's Disease? child of mine has Hirschprung's Disease...searching for others to talk with. This has been hard. If anyone responds just to get points I will DELETE this question and you will lose your points. Grow up.

Answer: http://www.lehman.cuny.edu/faculty/jflei tas/bandaides/sophie.htm Visit this girls page. Hopefully you can contact her and get some help and advice. Good Luck! Sorry, just checked the link and it doesn't work, even tho her page is actually there. Strange. Type in Hirschprung's into www.altavista.co.uk then select the 3rd link down!

Question: Hirschprung`s disease? My baby was born with hirschprung`s disease, all of the large intestine is affected. He is 9 months old. The doctor did a ileostomy and later, he will do the pull-trough. Your experiences could be helpful to me. Thank you.

Answer: My little boy was very early and suffered tummy problems almost from birth. At one point Hirschprung's disease was suspected altough luckily this was found not to be the case. The cause was not found but they performed an ileostomy to help relieve the symptoms. He has alot of other problems including a tracheostomy but taking care of the ileostomy was the hardest thing for me to get used to, it made me physically sick! but it is surprising what you get used to and after a while I started to see it as a blessing. I least he never gets leaky nappies!! The only thing is to remember not to put anything at all in the bath water as it loosens the bags. Instead I wash him down using soap and a flannel whilst he is lying on a towel and then when he is clean I pop him in the bath. Most little boys hands find their privates early on but instead my baby loves pulling on his bag. As soon as his nappy is off his hand is straight down there giving it a tug, he is now strong enough to whip the whole thing off and once ended up with an eyeful, literally! The other thing is having to discreetly empty the bag of air. This can be done quite sneekily without anyone suspecting. Comes in handy if anyone barges in front of you in a queue. Just let the air out, wait a second then give the offending person a disgusted look so everyone thinks they did it! Seriously though, I know how heartbreaking it is to see your baby suffering. To put up with the endless appointments and hospital visits. But these little ones are so resilient. It is amazing how they seem to just sail through all the hard times and still find the time to charm you over with a winning smile. Everything works out for the best sooner or later.

Question: Will my old Hirschprung's Disease DQ me from USMC Enlistment? When I was a child I had Hirschprung's Disease. I had two operations before I was 6 that removed the dead tissue in my colon and large intestine. Since then I've had a pretty normal life. But having Hirschprung's Disease is a DQ in the Marines. I won't lie or not tell them but my question is: in the eyes of MARINES and PHYSICIANS, do I still "have it" if I had successful operations when I was little? The only lasting ramifications are the two harmless/painless scars on my abdomen. I don't take any medications for it and can eat pretty much anything without getting sick. Special thanks to the military and medical personnel for taking the time to read and provide any info, J Yeah, that is comprehensive. Thank you. I think my surgery could be classified under c.(5): bowel resection, but I'm not sure. If it is, can I get a waiver for that if I have proven myself of maintaining good physical health in the past?

Answer: Only "gastrointestinal functional and motility disorders within the past 2 years" are disqualifying. Otherwise, Hirschprung's is not disqualifying.

Question: Has anyone ever heard of hirschprung's disease?

Answer: Hirschsprung's Disease( also known as congenital aganglionic megacolon) is a birth defect in which nerve cells in the wall of the colon (large intestine) do not develop. These nerve cells, called ganglion cells, control the muscles of the colon that normally push food and digestive waste through the large intestine. In Hirschsprung's disease, the muscles in the wall of the colon do not contract properly, preventing waste from moving through the colon. This may lead to trapped stool, infection, inflammation, and constipation. Hirschsprung's disease is diagnosed soon after birth in about 1 of every 5,000 newborns. It is about four times more common in males than females.1