Familial Adenomatous Polyposis

Question: Has anyone heard of FAP (Familial Adenomatous Polyposis) and has the disease..? I have it, found out about 7 years ago, and had an ileo-rectal anastomosis, and need to go back in for another op or two and just wondering if there is anyone else who has this, or knows anyone, as the only people that I know that have this are my family. My hubby and I are planning another baby, but I has to much trouble with the first one (painwise) and wondering if hormones can speed up the growth of polyps? (hope this isn't to confusing... it's confusing me lol) Thanks = )

Answer: I know of FAP, it is a painful disorder because of risks but birth control, pregnancy hormones etc should not interfere with FAP, feel free to ask your doctor or your OB, good luck

Question: Familial adenomatous polyposis - Is it transmissible? Let me start off by saying that I am not calling my girlfriend a liar if it seems that way, I'm just a naturally curious person. My girlfriend has Familial adenomatous polyposis (FAP) and almost a year ago she told me that because of this, if I were to somehow get some of her blood in my mouth (for example if I kissed cut), I would contract the disease through her DNA. So here I am tonight, sitting at my computer, when I remembered my girlfriend mentioning it. With nothing to do, I decided to look it up and see if there are any other ways it can be transferred from person to person but I can't find any. I can't even find any mentions of it being transmissible through blood, so I'm pretty confused.

Answer: What is familial adenomatous polyposis? Familial adenomatous polyposis (FAP) is an inherited disorder characterized by cancer of the large intestine (colon) and rectum. People with the classic type of familial adenomatous polyposis may begin to develop multiple noncancerous (benign) growths (polyps) in the colon as early as their teenage years. Unless the colon is removed, these polyps will become malignant (cancerous). The average age at which an individual develops colon cancer in classic familial adenomatous polyposis is 39 years. Some people have a variant of the disorder, called attenuated familial adenomatous polyposis, in which polyp growth is delayed. The average age of colorectal cancer onset for attenuated familial adenomatous polyposis is 55 years. In people with classic familial adenomatous polyposis, the number of polyps increases with age, and hundreds to thousands of polyps can develop in the colon. Also of particular significance are noncancerous growths called desmoid tumors. These fibrous tumors usually occur in the tissue covering the intestines and may be provoked by surgery to remove the colon. Desmoid tumors tend to recur after they are surgically removed. In both classic familial adenomatous polyposis and its attenuated variant, benign and malignant tumors are sometimes found in other places in the body, including the duodenum (a section of the small intestine), stomach, bones, skin, and other tissues. People who have colon polyps as well as growths outside the colon are sometimes described as having Gardner syndrome. A milder type of familial adenomatous polyposis, called autosomal recessive familial adenomatous polyposis, has also been identified. People with the autosomal recessive type of this disorder have fewer polyps than those with the classic type. Fewer than 100 polyps typically develop, rather than hundreds or thousands. The autosomal recessive type of this disorder is caused by mutations in a different gene than the classic and attenuated types of familial adenomatous polyposis. **I looked everywhere possible on the internet and found nothing that even hinted that this is transmissible. Maybe your girlfriend was misinformed on how it can be transmitted and was just worried about your safety. Let her know that you were just curious about her medical condition and that you did some research so you could be more informed of her situation and that you can't find anything stating that it can be transmitted. Tell her that she may want to speak with her doctor to find out for sure if it can be transmitted or if it is purely genetic. Good luck!

Question: What are the best medicines for treatment of Desmoid tumors in FAP in India? Desmoid tumors after 11 months after Total Proctocolectomy illeo-illeal Anastomosis in Classical Familial Adenomatous Polyposis Syndrome...

Answer: This isn’t a one size fits all situation. You need to speak to your oncologist.